Information on Cancer: The following are some helpful links that provide additional
Ahead of our time is a world-wide organization of cancer patients who have banded
together to share emotional support, compare medical research and educate our health
care providers. If you are tired of the stares and the dismissive suggestions to
“wear a wig”, you will find understanding and, indeed, empowerment among us.
The American Cancer Society offers free, comprehensive patient services and programs
designed to help our patients with their information, day-to-day living, and emotional
support needs. Contact your American Cancer Society at 800-227-2345 to find programs
available in your area.
The American Brain Tumor Association (ABTA) provides critical funding to researchers
working towards breakthroughs in brain tumor diagnosis, treatment and care, with
the ultimate goal of finding a cure. The ABTA is also the recognized resource for
comprehensive information and compassionate support for the brain tumor patients,
families and caregivers who are living with the disease.
The American Liver Foundation's mission is to facilitate, advocate and promote education,
support and research for the prevention, treatment and cure of liver disease.
The American Lung Association is the leading organization working to save lives
by improving lung health and preventing lung disease through Education, Advocacy
The organization is dedicated to assuring that all people with cancer have access
to supportive care for the psychological, emotional, spiritual and social impact
that this disease makes on their lives.
The mission of the foundation is to increase education and awareness of amyloidosis
within the community leading to earlier diagnosis and improved treatment.
A great resource for general health, wellness and cancer specific information.
Bright Pink is a national non-profit organization that provides education and support
to young women who are at high risk for breast and ovarian cancer. We arm young
women with knowledge, options and a great attitude, and offer companionship and
empathy during their journey. We empower them to take control of their breast and
ovarian health and in turn, grant them the freedom and peace of mind to live a beautiful
and fulfilling life.
Blood & Marrow Transplant Information Network (BMT InfoNet) is dedicated to
providing transplant patients, survivors and their loved ones with emotional support
and high quality, easy-to-understand information about bone marrow, peripheral blood
stem cell and cord blood transplants.
The site offers the latest information for the entire brain tumor community, from
newly diagnosed patients, to survivors, families and healthcare professionals.
Delivering assistance to mastectomy retail outlets all over the United States to
reach the newly diagnosed.
- Providing Nurse Navigators Organizations a valuable resource to distribute among
their breast cancer patients.
- Giving advocacy to thousands of women that have/had breast cancer women with education
and documented resource materials.
- Offering a true fellowship among women to assist in changing their physical health
and mindset as they face their future.
- Believing and promoting wellness through body, mind and spirit. Charges women with
a be proactive in body, mind and spirit for their breast cancer journey.
- Encouraging and educating women to be Ambassadors of Wellness in order that women
will reach their community with more substance of education of personal responsibility
To all who are newly diagnosed with breast cancer, family member, or a friend, we
welcome you here. We have devoted our efforts to provide you with the knowledge
that has helped other women and men in their journey through breast cancer. We do
not offer medical advice, but we do provide links to other sources of information
to help take the mystery out of your diagnosis, and hopefully help you with other
information you did not realize you needed to know.
To provide a fighting chance to every life threatened by breast cancer no matter
what age, race, sex, or financial challenge through screening assistance programs.
We are dedicated to helping Breast Cancer Survivors reclaim a positive body image and a healthy lifestyle.
Cancer.Net brings the expertise and resources of the American Society of Clinical
Oncology (ASCO), the voice of the world’s cancer physicians, to people living with
cancer and those who care for and care about them. All the information and content
on Cancer.Net was developed and approved by the cancer doctors who are members of
ASCO, making Cancer.Net an up-to date and trusted resource for cancer information.
Cancer.Net is supported by The ASCO Cancer Foundation, which provides funding for
cutting-edge cancer research, professional education, and patient and family support.
Cancer and Careers is committed to changing the face of cancer in the workplace
by providing a comprehensive website, free publications, and a series of support
groups and educational seminars for employees with cancer.
Good resource for all cancer types, cancer treatment, managing side effects, support
& resources, clinical trials and cancer tips.
CancerCare is a national nonprofit, 501(c)(3) organization that provides free, professional
support services to anyone affected by cancer: people with cancer, caregivers, children,
loved ones, and the bereaved. CancerCare programs—including counseling and support
groups, education, financial assistance and practical help—are provided by professional
oncology social workers and are completely free of charge.
A fully functional social network for people with cancer, their caregivers and others
who are interested in staying up-to-date about the set of diseases known as cancer.
CancerConnect is comprised of communities of individuals with similar interests
in the area of cancer. Disease-specific groups as well as groups for caregivers,
health and wellness, and nutrition all exist to provide patients with support during
their cancer journey. In addition, the website is populated with rich content to
support the many ongoing needs of individuals battling cancer.
The CICL is a toll-free, national service founded in 1981 and funded by the AMC
Cancer Fund ( www.amc.org).
Housed at the University of Colorado Cancer Center, the CICL provides evidenced-based
counseling for the whole person. Our mission is to enrich the lives of all people
affected by cancer and to be an additional resource in an overwhelmed health care
system. We provide and translate up-to-date, comprehensive medical information and
offer brief, personalized and professional counseling when our callers need it most.
Counselors are highly trained, master’s-level psychosocial professionals.
The Cancer Support Community is
an international non-profit dedicated to providing support, education and hope to
people affected by cancer. As the largest employer of psychosocial oncology mental
health professionals in the United States, the organization offers a network of
personalized services and education for all people affected by cancer. Its global
network brings the highest quality cancer support to the millions of people touched
The only foundation that assists all cancer families in the state of Maryland with
financial and quality of life resources.
CaringBridge provides free websites that connect people experiencing a significant health challenge to family and friends, making each health journey easier.
Caregiver Media Group is a leading provider of information, support and guidance
for family and professional caregivers. Founded in 1995, we produce Today's Caregiver
magazine, the first national magazine dedicated to caregivers, the "Fearless Caregiver
Conferences", and our web site, caregiver.com which includes topic specific newsletters,
online discussion lists, back issue articles of Today's Caregiver magazine, chat
rooms and an online store. Caregiver Media Group and all of it's products are developed
for caregivers, about caregivers and by caregivers.
Founded in 2007, Caring.com is the leading online destination for those seeking
information and support as they care for aging parents, spouses, and other loved
ones. Mission-to help the helpers. We equip family caregivers to make better decisions,
save time and money, and feel less alone -- and less stressed -- as they face the
many challenges of care giving.
Caring Connections, a program of the National Hospice and Palliative Care Organization
(NHPCO), is a national consumer and community engagement initiative to improve care
at the end of life.
The mission of Choose Hope is to generate enough profitable revenue that it can
contribute significant donations to cancer research.
eHealth Initiative (eHI) is a non-profit organization whose mission is to drive improvement in the quality, safety, and efficiency of healthcare through information and technology. eHealth Initiative has created a Health IT Cancer Resource Guide to the types of tools and technologies that patients and their families, caregivers, and support networks can use to make understanding, treating, and coping with cancer a little bit easier.
Facing breast cancer together is an online support group for people facing breast
cancer. This site offers up-to-date information and a variety of links to breast
cancer related information.
The International Ovarian Cancer Connection, is an organization for
the support of those fighting ovarian cancer and other related illnesses. It functions
on the national and international level to increase public and professional awareness
and understanding of ovarian cancer and related illnesses, to advocate for increased
research and funding for more effective diagnostics and treatment, and to provide
tips for coping with the side effects of ovarian cancer and its treatment.
The Foundation for Women's Cancer, formerly the Gynecologic Cancer Foundation, was
established in 1991 by the Society of Gynecologic Oncologists (SGO) to promote public
awareness about the prevention, early detection and treatment of gynecologic cancers.
The Gathering Place opened in January 2000 as a nonprofit, community-based cancer
support center to fill an unmet need in the greater Cleveland community. The programs
and services offered address the social, emotional, physical, and spiritual needs
of individuals with cancer and their support network. The mission of The Gathering
Place is to support, educate and empower individuals and families touched by cancer
through programs and services provided free of charge.
The National Health Information Center (NHIC) is a health information referral service
sponsored by the Office of Disease Prevention and Health Promotion. NHIC puts health
professionals and consumers who have health questions in touch with those organizations
that are best able to provide answers. Using a database that contains descriptions
of health-related organizations, NHIC staff refer people to the most appropriate
resource. Spanish language information specialists are available
The Melanoma Research Foundation (MRF) is the largest independent, national organization
devoted to melanoma in the United States. Committed to the support of medical research
in finding effective treatments and eventually a cure for melanoma, the MRF also
educates patients and physicians about prevention, diagnosis and the treatment of
melanoma. The MRF is an active advocate for the melanoma community, helping to raise
awareness of this disease and the need for a cure. The MRF's website is the premier
source for melanoma information seekers.
Joe's House is a 501 (c) 3 non profit organization that was created by Ann W Calahan
in memory of her late husband Joe. Joe battled cancer for six years, having treatment
in Texas and New York. Finding a suitable place to stay was a challenge and after
Joe's death in 1997 Ann vowed to find a way to help others in the same situation.
In 2003 Joe's House website launched and fulfilled that promise.
The Kidney Cancer Association (KCA) is a charitable organization made up of patients,
family members, physicians, researchers, and other health professionals globally.
We fund, promote, and collaborate with the National Cancer Institute (NCI), American
Society for Clinical Oncology (ASCO), American Urological Association (AUA), and
other institutions on research projects. We educate families and physicians, and
serve as an advocate on behalf of patients at the state and federal levels.
The Leukemia & Lymphoma Society (LLS) is the world's largest voluntary health
organization dedicated to funding blood cancer research, education and patient services.
LLS's mission: Cure leukemia, lymphoma, Hodgkin's disease and myeloma, and improve
the quality of life of patients and their families.
Our mission is to conquer leukemia, lymphoma and myelodysplastic syndromes by funding research into their causes and cures, and to enrich the quality of life of those touched by these diseases.
Since 1997, we've been working to improve the lives of people affected by cancer.
We started as a small group trying to raise money to fight this disease. As cancer
has quietly become the world’s leading cause of death, our work has expanded and
now reaches every corner of the globe.
Living Beyond Breast Cancer is a national nonprofit organization dedicated to empowering
all women affected by breast cancer to live as long as possible with the best quality
of life. Programs and services include lbbc.org, the Survivors' Helpline at (888)
753-LBBC (5222), conferences, teleconferences, community meetings, newsletters,
publications and recordings.
Provides a free caregiving and volunteer service that allows for the creation of
private web-based communities to organize help for people in need. The hallmark
of our platform is an intuitive group calendar where members can schedule and sign
up for tasks that provide respite for the family including meals, rides to medical
appointments and visits. In every Lotsa Helping Hands community, there are also
standard community sections including Announcements, Message Boards, Photo Gallery,
and Well Wishes which facilitate broader community engagement.
Lung Cancer Alliance is the only national non-profit organization devoted solely
to support and advocacy for all those living with or at risk for lung cancer.
The Caring Ambassadors Program mission is to help improve the lives of those affected
by lung cancer through advocacy, information, and support.
Lung Cancer Circle of Hope is committed to educating the public and members of the
medical community about lung cancer; advocating on behalf of lung cancer patients,
their families and others at risk, influencing public policy decisions relating
to lung cancer and promoting increased funding for lung cancer research
Our mission is to provide the best lung cancer center on the web that fosters hope and support for those diagnosed with lung cancer and their families.
The Lymphoma Research Foundation (LRF) is the nation’s largest non-profit organization
devoted exclusively to funding innovative lymphoma research and providing people
with lymphoma and healthcare professionals with up-to-date information about this
type of cancer. LRF’s mission is to eradicate lymphoma and serve those touched by
Malecare works worldwide to improve the lives of people diagnosed with cancer, their
families and communities by making health services safe, available, understandable
The Melanoma International Foundation (MIF) is a 501( c) (3) non-profit organization
established in 2003, to serve a growing national and international melanoma patient
population. MIF provides personalized navigation to optimal treatment including
clinical trials. Melanoma International’s HonCode-designated website empowers patients
with scientifically backed information. Webinars are regularly presented by MIF
with top researchers leading the discussion on all aspects of melanoma, including
the latest treatments and the status of important clinical trials. MelanomaForum.org
provides truth and substance as well as much-needed emotional support in a moderated
on-line forum attracting 2000 members from 70 countries. Find out more at
The MMRF relentlessly pursues innovative means that accelerate the development of
next-generation multiple myeloma treatments to extend the lives of patients and
lead to a cure.
MyLifeLine.org believes a strong support community is critical for cancer patients.
Everyday, we provide free, personal websites to cancer patients and caregivers to
easily connect with family and friends, because no patient should ever feel alone.
The mission of the National Bone Marrow Transplant Link is to help patients, caregivers,
and families cope with the social and emotional challenges of bone marrow/stem cell
transplant from diagnosis through survivorship by providing vital information and
personalized support services.
National Brain Tumor Society (NBTS) is a leader in the brain tumor community, bringing
together the best of research and patient services to be a comprehensive resource
for patients, families, caregivers, researchers, and medical professionals.
The National Cancer Institute offers comprehensive information including cancer
Maintain an on-going support system for women, family members and friends facing
issues related to cervical cancer, HPV and other HPV cancers.
NIH’s mission is to seek fundamental knowledge about the nature and behavior of
living systems and the application of that knowledge to enhance health, lengthen
life, and reduce the burdens of illness and disability.
The National Marrow Donor Program® (NMDP) and our Be The Match Foundation®
are nonprofit organizations dedicated to creating an opportunity for all patients
to receive the bone marrow or umbilical cord blood transplant they need, when they
The mission of the NOCC is to raise awareness and promote education about ovarian
cancer. The Coalition is committed to improving the survival rate and quality of
life for women with ovarian cancer.
The National Cancer Institute coordinates the National Cancer Program, which conducts
and supports research, training, health information dissemination, and other programs
with respect to the cause, diagnosis, prevention, and treatment of cancer, rehabilitation
from cancer, and the continuing care of cancer patients and the families of cancer
The National Coalition for Cancer Survivorship is the oldest survivor-led cancer
advocacy organization in the country, advocating for quality cancer care for all
Americans and empowering cancer survivors. NCCS believes in evidence-based advocacy
for systemic changes at the federal level in how the nation researches, regulates,
finances, and delivers quality cancer care.
The goal of this website is to educate people about cancer so you can have more
informed conversations with your doctors and other health care providers and ultimately
live longer and better quality lives. NCCN.com includes information on all facets
of cancer, from prevention and screening through life after cancer.
Through OncoLink you can get comprehensive information about specific types of cancer,
updates on cancer treatments and news about research advances.
The Oncology Nursing Society is an excellent resource to help provide nurses with
the cancer information needed to help patients.
Founded in 1996, Patient Advocate Foundation (PAF) is a national non-profit, 501(c)3
direct patient services organization with a mission “to safeguard patients through
effective mediation assuring access to care, maintenance of employment and preservation
of their financial stability.” PAF serves as an active liaison between patients
and their insurer, employer and/or creditors to resolve insurance, job retention,
and/or debt crisis matters relative to their diagnosis through professional case
managers and a national network of health care attorneys. PAF case managers work
with patients to determine local, state, and federal programs that provide assistance
for their individual needs.
The goal of Patient Resource LLC is to empower people who are suffering with life-altering
diseases by giving them the most comprehensive and up-to-date guides to treatment
and facilities for their disease free of charge. The information is written for
ease of understanding and is offered in printed publications and online at PatientResource.com.
The Pink-Link Breast Cancer Support Network provides valuable community and support
resources for women affected by Breast Cancer. Pink-Link is a nonprofit organization
and all breast cancer support services are free. Pink-Link's key service, our online
database of Breast Cancer patients and survivors, creates an intimate and personal
link between breast cancer patients and survivors.
PCF is the leading philanthropic organization funding and accelerating prostate
cancer research globally.
The Sarcoma Alliance strives to improve the lives of people affected by sarcoma
through accurate diagnosis, improved access to care, guidance, education and support.
The Skin Cancer Foundation has set the standard for educating the public and the
medical profession about skin cancer, its prevention by means of sun protection,
the need for early detection, and prompt, effective treatment. It is the only international
organization devoted solely to combating the world’s most common cancer, now occurring
at epidemic levels.
Disability Benefits Help is a site dedicated to helping potential applicants wade through the Social Security Administration's application process with a special section for those affected by cancer.
SPOHNC homepage. Support groups and information for those with head and neck cancers.
Official site for Race for the Cure. Everything you wanted to know about breast
The Thyroid, Head and Neck Cancer (THANC) Foundation was incorporated in April 2003
and has quickly grown to become the largest private funder of research in the country
for these areas of cancer. In addition to research, THANC sponsors continuing professional
medical education, community awareness and education, as well as patient outreach
and support programs. Under the medical direction of Dr. Mark Urken, THANC is housed
within the Institute for Head and Neck and Thyroid Cancer at the Phillips Ambulatory
Care Center at Beth Israel Medical Center.
Vital Options International is a not-for-profit cancer communications, support,
and advocacy organization with a mission, to facilitate a global cancer dialogue.
The nation’s largest private supporter of pancreatic cancer research, The Lustgarten
Foundation provides patients and caregivers with free information, including a comprehensive
handbook, Expert information series, and a Web site linking to an array of resources.
Thanks to a multi-year commitment from Cablevision Systems Corporation to underwrite
all of the Foundation’s administrative expenses, 100% of every donation goes directly
to pancreatic cancer research.
The Ovarian Cancer National Alliance works to advance the interests of women with
ovarian cancer by advocating at a national level for increases in research funding
for the development of an early detection test, improved health care practices,
and life-saving treatment protocols.
Connect with a global community who lives your journey with illness – NOT based
on who you are, but through the intimate experiences YOU share in living with a
disease or in caring for a loved one with a medical condition.
The United Ostomy Associations of America, Inc. (UOAA) is a national network for
bowel and urinary diversion support groups in the United States. Its goal is to
provide a nonprofit association that will serve to unify and strengthen its member
support groups, which are organized for the benefit of people who have, or will
have intestinal or urinary diversions and their caregivers.
Us TOO International Prostate Cancer Education & Support Network is a grassroots,
registered 501(c)(3) non-profit prostate cancer education and support network of
325 support group chapters worldwide, providing men and their families with free
information, materials and peer-to-peer support so they can make informed choices
on detection, treatment options and coping with ongoing survivorship. The organization
was founded in 1990 by five men who had been treated for prostate cancer.
By promoting greater awareness of the need for early detection and leveraging public
resources for life-saving research and new treatments for those with advanced disease,
we will win this fight. Our ultimate goal is to create a life-giving legacy for
our sons and grandsons: the first generation of men who are free from prostate cancer
– "Generation ZERO." Join us in creating this new generation, where prostate cancer
becomes an obsolete health condition, much like polio. This new day is coming sooner
than you may think.